Canadian PKU and Allied Disorders - Articles http://www.canpcu.org/ Articles from Canadian PKU and Allied Disorders Tue, 15 Sep 2026 00:00:00 +0000 en When Knowing What to Do Isn't Enough: The Emotional Weight of PKU Management http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=65 Tue, 15 Sep 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=65 Living with PKU can mean knowing exactly what needs to be done while also navigating the very human reality that doing it every day, for a lifetime, is not always simple. Quand savoir quoi faire ne suffit pas : le poids emotionnel de la prise en charge de la PCU http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=66 Tue, 15 Sep 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=66 Vivre avec la PCU peut signifier savoir exactement ce qu'il faut faire, tout en composant avec une realite tres humaine : le faire chaque jour, pendant toute une vie, n'est pas toujours simple. Rare-ing to Go: Help Your School See the Whole Child http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=53 Fri, 28 Aug 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=53 A rare diagnosis is important information, but it is not the whole story. Use CanChild’s F-Words for Child Development to introduce your child’s strengths, relationships, interests and hopes to their school team. Prêt pour l'école : aider l'équipe scolaire à voir l'enfant dans sa globalité http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=54 Fri, 28 Aug 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=54 Un diagnostic rare est une information importante, mais il ne raconte pas toute l'histoire. Utilisez les « Mes mots préférés » de CanChild pour présenter à l'équipe scolaire les forces, les relations, les intérêts et les aspirations de votre enfant. 2026 Spring Newsletter - CanPKU+ http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=38 Thu, 28 May 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=38 Newsletter, CanPKU+, Community, Advocacy, Research, Education, Sustain Understanding mRNA Therapies in Rare Disease http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=34 Tue, 12 May 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=34 This article is presented in English. The article comes from the National Organization for Rare Disorders (NORD). Cet article est présenté en anglais. L'article provient de la National Organization for Rare Disorders (NORD). Sepiapterin (Sephience) Reimbursement Review Process http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=39 Fri, 01 May 2026 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=39 Sepiapterin, Sephience, PKU, Phenylketonuria, Hyperphenylalaninemia, PKU treatment, PKU therapy, Phenylalanine-restricted nutritional therapy, Drug reimbursement, Rare disease treatment Venir au Canada http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=13 Mon, 27 Jan 2025 00:00:00 +0000 CARES - Education/Éducation http://www.canpcu.org/index.cfm?fuseaction=Feature.showFeature&featureID=13